And then, as we went along and people were expecting, “Well, what’s the healthcare community going to do about this,” and they heard through the media, again, that people needed to have two things. 62 episodes A Colombian remake of the U.S. TV show Breaking Bad. Jamie DePolo:
And so, since that time, I have been very blessed to continue on my targeted treatment. But then, if I let myself go down that road of thinking awful about whatever could take place, I have to punch myself out of that, and say, “You can’t do this, because it doesn’t get you anywhere, and it robs you of the time that you have each day to do something positive, or to do something that you enjoy, talk to someone that you value.” I get great satisfaction out of my advocacy work, and I think that’s part of my background as a teacher. Shirley Mertz:
It takes usually 18 months, or in many cases, the treatments that I’ve had took years to develop. DeVita VT Jr, et al., eds. And so they hope for the next treatment to be there, and what we’ve all discovered, whether we are worrying about COVID or worrying about metastatic breast cancer, is that treatments are not easily discovered nor are they quickly discovered.
It was difficult, because I was raised to obey and believe what the doctor says, because that’s how you get well. She decided in 2005 to use her skills and intellect to advocate for research to end deaths from metastatic breast cancer; to lobby for access to affordable, quality healthcare; and to empower metastatic patients to make informed healthcare decisions to have the best outcomes.
I think they call that asymptomatic. With rare exceptions, cancer that has spread to the bones can't be cured.
After receiving targeted treatment, Shirley experienced a durable remission.
I don’t think you should come to the hospital or to where I’m located, because you’ll be waiting in a room with other people, so let’s just put that off for a while.”. And so, I think in some cases, or many cases, the telemedicine appointments will continue. He said the sad thing is that patients are associating hospitals with disease. I was ecstatic.
Right, right.
So, you asked for confirmation, right, because…? I was a dutiful patient. And people who are metastatic right now are giving more thought to how they want to die, when I get to the point that my disease no longer responds to treatment, and I’m told that’s all we can do, and I have to face my death. They needed either treatments, certainly, to help the people who were diagnosed with COVID-19 and vaccines to prevent other people from getting the disease.
What are people experiencing from your viewpoint? Treatments can help reduce pain and other symptoms of bone metastases. What to Watch Latest Trailers IMDb TV IMDb Originals IMDb Picks Awards & Events Oscars Best Picture Winners Best Picture Winners Golden Globes Emmys San Diego Comic-Con New York Comic-Con Sundance Film Festival Toronto Int'l Film Festival Awards Central Festival Central All Events
And when finally my oncologist agreed to that, the scan showed that my skeleton had lit up like a Christmas tree.
See our safety precautions in response to COVID-19. It’s a feeling that you can tell people when you address them, as a metastatic patient to the public, which I’ve done, but I think now, people who understand what we’re going through with COVID will better understand people who are facing an incurable disease. Shirley Mertz:
With Constanza Hernández, Diego Trujillo, Roberto Urbina, Sandra Reyes. And I must say that Breastcancer.org does a wonderful job of explaining the pathology report and different subtypes, so I would urge listeners to check your website out.
I just think there’s a big difference. Shirley Mertz:
But they could get the COVID virus. Accessed March 1, 2020. My heart goes out to newly diagnosed, because sometimes you need that little... if you’re hearing bad news for the first time, you need that little pat on the knee, pat on the shoulder, or looking into their eyes. The stage of a breast cancer is determined by the cancer’s characteristics, such as how large it... Ductal carcinoma in situ (DCIS) is non-invasive breast cancer. No, they have not. I could hold their hand.
Okay, well, awful-izing, like right now, I haven’t had a scan in 7 months, and sometimes I think, “Oh my, this could be really bad,” because it’s been so long.
I know at least in Austin, Texas, because I talked to two surgeons there, they’re starting to do surgeries again. Shirley Mertz:
Right, and you know, a tag to that, Jamie, is that I believe that metastatic patients should not just rely on their oncologist for their medical healthcare or their healthcare. I think that is missing. I’m hopeful that by the end of May they will. I mean, normally I’m anywhere from 3 to 4 months, and so it’s been an anxious situation. Would you like an appointment?” So, okay, I set a tentative appointment, but I did ask my beautician, “What steps are you taking to protect yourself and to protect me?”. If I can be a little intrusive, have your infusions resumed yet, or are you still waiting? You know, what if something is growing, and when you have metastatic disease, things do not always impact you physically. You know, what does it mean to them to have it? A bilateral mastectomy, if you’ve been diagnosed with breast cancer, does not guarantee you a cure, and I thought that. So, it’s this weighing all these various things, where you don’t have enough information to really make a completely informed decision, which must make it so frustrating and anxiety-inducing, I guess. It’s been so, so enlightening and so informative. Shirley is often invited to speak at conferences about the challenges and needs of patients. Episode 2? Among her numerous awards, Shirley was honored at the White House in 2011 as a Champion of Change in Breast Cancer by President Obama.
I always imagined that my death would come when I have a loved one by my side, my husband or my sons. But even in places where they are, metastatic breast cancer patients that I have talked to are still concerned about going out and doing things that they did before, because they’re very concerned about also getting impacted by someone who might not have any symptoms.
My mother was born in 1918, and her family got through that. And then, we have to also hope there will be support for this research, and I think there definitely is support for research for COVID-19. And then two other quick points. Accessed Dec. 27, 2019. Those are two things that, in some ways, are very long-lasting.
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